March 1, 2012.....I prayed and prayed. I know all is going to be ok, not sure why I know this, but I just feel it. We get into the ultra sound room with the tech and see our sweet little Preston on the screen moving like crazy! She comments on how active he is. So she gets strangely quiet and Eric starts to ask questions all of which she says we need to talk to the Doctor. It just gets weird, she asks "so Dr. W saw you 2 weeks ago right?" We say yes. "She scanned you herself?" yes "She did not see anything except the duodenal atresia?" yes. It just was strange and you knew something was wrong, but she kept saying you need to talk to the Dr, who apparently can not come see us at that moment, so I start sobbing and Eric starts sobbing. The tech says "I am so sorry, you seem like such nice people. I wish I could tell you something but you have to wait for Dr. S."
So finally Dr. S comes in (who is super loud) just to tell us that she wants us to go get something to eat and then she will have time to talk to us. Yeah I feel like eating, I do eat a little because it is for Preston not me. So finally after over an hour she meets with us and says "Club Foot, Sandal Toe, something with the heart chambers, something with the brain, Trisomy 18 perhaps (which is lethal). But she wants to scan me again to be sure. First thing she does is call in another doctor. She rules out Club Foot, she is iffy about the brain thing, and still sees everything else. She wants to get me into the Pediatric Cardiologist right away and also is strongly advising an amnio test so we can be prepared. Oh and says you don't really have a lot of options at this point (I kind of want to punch her).
Against my better judgement we agree to the amnio. A long needle inserted into my belly button....I think I am still getting dried up blood out of there. They want to monitor me after that and I start having pretty strong contractions pretty close together so down to maternity I go to get some medication to stop the contractions. I get an IV and am told I need to take 3 pills with an hour between each one. If that does not work I need to stay the night. The whole time we are hysterical. Nothing in life is worse then thinking something bad is going to happen to your child. It is a feeling I wish for no one. Finally the contractions stop and we are able to go over to the awesome Cardio doctor to have him take a look at Preston's heart. He is truly a wonderful Doctor, so comforting and stayed late just to see us. He took a look and did not see anything abnormal in the heart for the stage of pregnancy. It was just like a typical 34 week old babies heart. Ok, big weight lifted for that portion at least.
So we get home and cry some more, I am still feeling some contractions and am mentally and physically drained. I stay home from work to relax as instructed. My regular OB doctor calls me to see how I am and I just say "Confused" he says he is going to get the results from the "Fish Test" which is a pulmonary test that you get from the amniotic fluid and the official results will probably not be out until after the baby is born since I am so far along at this point. It is Friday so he said he will call me Monday or Tuesday. I think it is Wednesday before I finally hear from his office and he wants Eric and I to come in....so not a good sign. He shares with us that the Fish Test shows that the baby does have Downs Syndrome. We ask how accurate that is and he says around 90%. In that office I felt a calm come over me...I can't explain it, I just knew it was going to be ok. I still worried and cried, but I had faith. To be honest I believed God would heal him and he would be fine. That was not his plan, but that is ok! I look at his sweet face and I can't imagine him any other way. I would not want him any other way. I like that he is going to have a totally different outlook on life than anyone else. I love that he is different and is going to amaze people with what he is able to accomplish. I would not change him for anything!
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