Surgery Day....Again!

Surgery Day!  Excited to do something to speed up the process, but hate sending a tiny baby into surgery again.  We were told it could take up to 6 hours because they need to determine where the ganglion cells started in the bowl and to do that they would need to biopsy different sections and each time wait to see if pathology would find the cells and if not biopsy another section.  We also elected to insert a feeding tube, after consulting with all the doctors, due to his sluggish eating.  This also will help to get him home sooner.

So we prepared for a long day.  Also Eric and I talked and since there did not seem to be a RSV restriction in the OR waiting area and in the hallways where they would wheel him through to get to the OR that we found a loop hole in the "no children" rule and we were going to get our kids in the same room and let them see each other again.  So excited about that!

We woke up bright and early and headed into the hospital and made sure to pack up snacks and entertainment for Kierstin.  Eric and Kierstin waited in the hall and I went in to the NICU with him.  The nurses got him ready and when we received word from the Surgeon that she was ready we headed down (much later than the 8am time they scheduled him at).  Kierstin, Eric and I all rode down the elevator with him.  I think he perked up a little hearing Sissy's voice :).  We talked to the Anesthesiologist and OR nurses as well as the surgeon and were saying our good byes and prayers with our boy when a phone call came from the ER.  Due to a testicular torsion we were being bumped from the OR....look that up and you will see why!  So we headed back up with him until around 12:00 where we would give it a second try.

Ok, so same thing....we head down there with him and pray over him and in he goes and we head to the waiting room.  We wait about 45 minutes and the OR nurse comes out to tell us that the first biopsy results showed cells!  yay!  This means they don't have to do any more biopsies and they can proceed with the surgery.  Eric's parents come and wait with us.  Let me tell you after preparing to be there for 6 hours, I was so glad when the Surgeon came out after only 3 hours and said she was all done!  It was successful and she was very pleased with how the surgery went.  All great news and just what we needed!  The Anesthesiologist came out and said something (which we could not understand since English clearly was not his first language) he was smiling and looked happy about it so we just said "Great!"

We head up and Eric and I take turns seeing our boy who is still out cold.  All good!  So he is kind of out of it for the rest of the day and we leave him to heal and don't pick him up :(.

The next day, I go in and start learning about Colostomy and G-Tube care, never thought I would be doing that, but I am surprising myself these days!  I am doing so much that I never thought I would ever do.  My world has changed so much from a year ago.  I have changed.  I am somehow a different person. Still the same values, but I am so much stronger.  Preston has changed  our whole family in the best ways.  He continues to change us.  My family is all becoming better versions of ourselves.  That is just one of the gifts Preston has given us.