My boy who has already overcame so many hurdles in life has a big one he is facing. On February 12th he will be going in for his 3rd and most intense surgery to date. The surgery is called a pull through. He has Hirschsprungs Disease, basically that means part of his bowl does not function correctly so the surgeon needs to bypass the part that is not working and pull the good part down and reattach. Sounds simple enough, but it is scheduled to take up to 6 hours! This was one of the reasons he got the colostomy bag when he was 3 weeks old. He was too little for this major surgery so that was done as a band aid for the problem until he got larger. So now at 10 months old he is ready!
How do I feel? Freaking out a little! I am excited to move on with our lives....the colostomy bag will be gone after this and we knew this surgery was looming ahead of him, but at the same time I am not liking the fact that my sweet 10 month old baby has to go into surgery yet again! I really don't like that it is going to be so long and I hate to see him in the hospital yet again!
Yet, I know this too is all in God's hands. I have trusted God this far and even when I felt like I had no strength left, he helped me through! Plus lets face it, Preston has the hard part and he is as happy as can be! That boy laughs all the time and smiles whenever you look at him. My sweet boy has such joy! He has been through so much, way more than any child should have to go through and he is so happy! I know God will see us all through this trial.
I am not sure if I shared this on here or not, but I want to let you in on our exciting news! Preston's VSD is closing on it's own and it looks like he can avoid getting surgery on his heart! Great news and while it is not closed all the way yet, it looks like it is not something we are going to have to go into surgery for. Also the fact that he is growing strong and eating well are all good signs that his little heart is healing.
I ask that all who read this remember to say extra prayers for Preston as we prepare for surgery. Pray that God guides the hands of the surgeons and that there is little scaring inside from previous surgeries. Pray that God gives Preston strength and heals him quickly afterwards and that he has no pain.
This boy is going to have such a wonderful story to tell someday and I for one am so happy to be sharing it with him!
Hi, I don't know you, but just wanted to tell you how precious Preston is. I have gone through some of the same. The surgery's with a very small baby., My daughter was born at 26 weeks gestation. She had several surgeries before the age of 1. She is now 26. She is blind but an amazing woman. I will be following Preston's wonderful life through your blog. He is truly a gift, a beautiful one at that. My prayers are with you in your future trials.
ReplyDeleteThank you so much! Your daughter is lucky to have such a supportive parent!
DeleteJenny, what a sweet, adorable family you have. My name is Jeri Capps, I use to babysit Eric :) My mom and his dad our first cousins...I have just read your blog and want you to know that my daughter Christa was born with Hirschsprungs Disease, she had the pull through surgery at 5 weeks old (she was a big healthy baby) and today she is a healthy 14 year old...please feel free to email me at capps321@aol.com if you have any questions about the surgery. THank you for sharing your wonderful story and I hope to one day meet you and your sweet babies...
ReplyDeleteJeri, wow, I did not know that. I will contact you for sure. So glad she is doing well!
DeleteSending prayers! He sounds like a strong little boy going through all of that at such a young age! I know the feeling about what you are going through my son has gone through the same thing. He also has Hirschsprungs along with Preston. My little guy had his pull through in August, he did great and I'm sure Preston will also :) My name is Chelsey by the way, you can find me on the Prayers for Preston facebook page!
ReplyDeleteSo great to hear! I know Preston will be a success story as well :)
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